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PENGALAMAN AYAH DALAM MERAWAT ANAK DENGAN AUTISM SPECTRUM DISORDER (ASD)
Abstract
Autism Spectrum Disorder (ASD) merupakan kondisi kesulitan dalam interaksi sosial dan komunikasi pada perkembangan anak yang berlangsung seumur hidup. Pola pengasuhan terhadap anak ini menjadi tantangan tersendiri terhadap orang tua khususnya seorang ayah. Tujuan review ini adalah untuk mengetahui bagaimana pengalaman ayah dalam merawat anak dengan Autism Spectrum Disorder. Penelitian kualitatif ini menggunakan pendekatan studi pustaka. Peneliti menemukan jurnal internasional pada beberapa database yang meliputi Science Direct, Sage Pub, Springer, Elsevier, Tandfonline dan JStor dari tahun 2011-2020. Kegiatan ini meliputi review terhadap jurnal yang membahas mengenai pengalaman ayah dalam merawat anak dengan autism spectrum disorder. Setelah melakukan serangkaian screening ditemukan enam jurnal yang sesuai dengan topic tersebut. Hasil penelitian ini menunjukan bahwa pengalaman merawat anak dengan autism spectrum disorder dapat memperkaya pengalaman, membutuhkan penerimaan dan dukungan lingkungan sekitar untuk mengurangi stressor yang didapatkan. Diperlukan adanya kegiatan untuk memperkaya pemahaman dalam pola pengasuhan anak kepada ayah agar kualitas hidup anak penderita Autism Spektrum Disorder semakin baik.
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American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5). American Psychiatric Pub.
Amireh, M. M. H. (2019). Stress Levels and Coping Strategies among Parents of Children with Autism and Down Syndrome: The Effect of Demographic Variables on Levels of Stress. Child Care in Practice, 25(2), 146–156. https://doi.org/10.1080/13575279.2018.1446907
Brown, M., Whiting, J., Haque, A., & Kahumoku-Fessler, E. (2020). A Summative Content Analysis of Stress and Coping among Parents of Children with Autism. American Journal of Family Therapy, 1–14. https://doi.org/10.1080/01926187.2020.1791764
Burrell, A., Ives, J., & Unwin, G. (2017). The Experiences of Fathers Who Have Offspring with Autism Spectrum Disorder. Springer, 47, 1135–1147. https://doi.org/10.1007/s10803-017-3035-2
Crowell, J. A., Keluskar, J., & Gorecki, A. (2019). Parenting behavior and the development of children with autism spectrum disorder. Comprehensive Psychiatry, 90, 21–29. https://doi.org/10.1016/j.comppsych.2018.11.007
Eggleston, M. J. ., Thabrew, H., Frampton, C. M. ., Eggleston, K. H. ., & Hennig, S. C. (2019). Obtaining an autism spectrum disorder diagnosis and supports: New Zealand parents’ experiences. Research in Autism Spectrum Disorders, 62, 18–25. https://doi.org/10.1016/j.rasd.2019.02.004
Frye, L. (2016). Fathers’ Experience With Autism Spectrum Disorder: Nursing Implications. Journal of Pediatric Health Care, 30(5), 453–463. https://doi.org/10.1016/j.pedhc.2015.10.012
Gasser, M. (2017). Time Spent on Child Care by Fathers in Leadership Positions: The Role of Work Hours and Flextime. Journal of Family Issues, 38(8), 1066–1088. https://doi.org/10.1177/0192513X15597291
Hannon, M. D. (2017). Acknowledging intersectionality: An autoethnography of a black school counselor educator & father of a student with autism. Journal of Negro Education, 86(2), 154–162. https://doi.org/10.7709/jnegroeducation.86.2.0154
Heale, R., & Twycross, A. (2015). Validity and reliability in quantitative studies. Evidence-Based Nursing, 18(3), 66–67. https://doi.org/10.1136/eb-2015-102129
Hsiao, Y.-J. (2018). Parental Stress in Families of Children With Disabilities. Intervention in School and Clinic, 53(4), 201–205. https://doi.org/10.1177/1053451217712956
Jashar, D. T., Fein, D., Berry, L. N., Burke, J. D., Miller, L. E., Barton, M. L., & Dumont-Mathieu, T. (2019). Parental Perceptions of a Comprehensive Diagnostic Evaluation for Toddlers at Risk for Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 49(5), 1763–1777. https://doi.org/10.1007/s10803-018-3851-z
Kuravackel, G. M., Ruble, L. A., Reese, R. J., Ables, A. P., Rodgers, A. D., & Toland, M. D. (2018). COMPASS for Hope: Evaluating the Effectiveness of a Parent Training and Support Program for Children with ASD. Journal of Autism and Developmental Disorders, 48(2), 404–416. https://doi.org/10.1007/s10803-017-3333-8
Nitsche, N., & Grunow, D. (2018). Do economic resources play a role in bargaining child care in couples? Parental investment in cases of matching and mismatching gender ideologies in Germany. European Societies, 20(5), 785–815. https://doi.org/10.1080/14616696.2018.1473626
Onyedibe, M. C. C., Philip, L. I. U., Mefoh, C., & Onuiri, C. (2018). Parents of children with down syndrome: Do resilience and social support matter to their experience of carer stress? Journal of Psychology in Africa, 28(2), 94–99. https://doi.org/10.1080/14330237.2018.1455308
Paynter, J., Davies, M., & Beamish, W. (2018). Recognising the “forgotten man”: Fathers’ experiences in caring for a young child with autism spectrum disorder. Journal of Intellectual and Developmental Disability, 43(1), 112–124. https://doi.org/10.3109/13668250.2017.1293235
Phillips, B. A., Conners, F., & Curtner-Smith, M. E. (2017). Parenting children with down syndrome: An analysis of parenting styles, parenting dimensions, and parental stress. Research in Developmental Disabilities, 68, 9–19. https://doi.org/10.1016/j.ridd.2017.06.010
Pinho, M., & Gaunt, R. (2020). The Determinants Of Paternal And Maternal Involvement In Childcare. In N. K. Toren (Ed.), Parental Involvement (pp. 115–141). Nova Science Publishers.
Pottas, A., & Pedro, A. (2016). Experiences of father carers of children with autism spectrum disorder: An exploratory study. Journal of Psychology in Africa, 26(6), 551–554. https://doi.org/10.1080/14330237.2016.1250426
Potter, C. A. (2017). Father involvement in the care, play, and education of children with autism. Journal of Intellectual and Developmental Disability, 42(4), 375–384. https://doi.org/10.3109/13668250.2016.1245851
Schertz, H. H., Lester, J. N., Erden, E., Safran, S., & Githens, P. (2020). Challenges and contributors to self-efficacy for caregivers of toddlers with autism. Autism, 24(5), 1260–1272. https://doi.org/10.1177/1362361319899761
Shalev, R. A., Lavine, C., & Di Martino, A. (2020). A Systematic Review of the Role of Parent Characteristics in Parent-Mediated Interventions for Children with Autism Spectrum Disorder. Journal of Developmental and Physical Disabilities, 32(1), 1–21. https://doi.org/10.1007/s10882-018-9641-x
Wang, H., Hu, X., & Han, Z. R. (2020). Parental stress, involvement, and family quality of life in mothers and fathers of children with autism spectrum disorder in mainland China: A dyadic analysis. Research in Developmental Disabilities, 107, 103791. https://doi.org/10.1016/j.ridd.2020.103791
World Health Organization. (2019). Autism spectrum disorders. World Health Organization. https://www.who.int/news-room/fact-sheets/detail/autism-spectrum-disorders
DOI: https://doi.org/10.24114/konseling.v18i1.27825
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